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Mälstam, Emelie
Publications (3 of 3) Show all publications
Mälstam, E., Bensing, S. & Asaba, E. (2018). Everyday managing and living with autoimmune Addison's disease: Exploring experiences using photovoice methods. Scandinavian Journal of Occupational Therapy, 25(5), 358-370
Open this publication in new window or tab >>Everyday managing and living with autoimmune Addison's disease: Exploring experiences using photovoice methods
2018 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 25, no 5, p. 358-370Article in journal (Refereed) Published
Abstract [en]

People with rare diseases are a minority group that faces risks for healthcare and work inequities because knowledge and resources on how to systematically support health or working life are limited. Integrating voices of persons living with rare diseases are an important aspect in inclusive and relevant healthcare practices. This study sought to actively involve persons with autoimmune Addison's disease (AAD), a rare condition, in exploring challenges and possibilities situated in everyday life. Photovoice methods were utilized to incorporate experiences through photographic documentation and group discussions with five persons over seven weeks. Data generated from group sessions were visually analyzed or transcribed and analyzed with thematic analysis. Five themes emerged: Individual and fine tuning in everyday life; It is not how it was; The power of knowledge and support; Becoming the expert in an uncertain context; and, Finding balance and paving new ways. The findings showed that everyday life with AAD was more complex than earlier portrayed; entailing several barriers and negotiations. In order to meet the needs of persons with AAD, more extensive and relevant information, support and self-management education is needed. Moreover, a complementary focus on everyday life to promote their health and wellbeing is also important.

Keywords
Activities of daily life, occupational science, photovoice method, primary adrenal insufficiency, self-management
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:hig:diva-28321 (URN)10.1080/11038128.2018.1502351 (DOI)000458559000006 ()30280621 (PubMedID)2-s2.0-85054366094 (Scopus ID)
Funder
Swedish Society for Medical Research (SSMF)
Available from: 2018-10-15 Created: 2018-10-15 Last updated: 2019-10-10Bibliographically approved
Hiswåls, A.-S., Marttila, A., Mälstam, E. & Macassa, G. (2017). Experiences of Unemployment  and Well-Being  After Job Loss During Economic Recession: Results of a Qualitative Study in East Central Sweden. Journal of Public Health Research, 6(3), 135-141, Article ID 995.
Open this publication in new window or tab >>Experiences of Unemployment  and Well-Being  After Job Loss During Economic Recession: Results of a Qualitative Study in East Central Sweden
2017 (English)In: Journal of Public Health Research, ISSN 2279-9028, E-ISSN 2279-9036, Vol. 6, no 3, p. 135-141, article id 995Article in journal (Refereed) Published
Abstract [en]

Introduction: Several studies have revealed an association between unemployment and ill health, and shown that unemployment can affect people differently. This study aimed to provide an understanding of the experiences of unemployment and perceptions of wellbeing among persons who involuntary lost their work during the recent economic recession in Gävle Municipality. Methods: Sixteen unemployed men and women aged 28-62 were interviewed face-to-face. A purposeful sampling strategy was used in order to suit the research question and to increase the variation among informants. The interview texts were analysed using thematic analysis. Results: Six different themes emerged from the accounts: The respondents perceived work as the basis for belonging, and loss of work affected their social life and consumption patterns due to changes in their financial situation. They also expressed feelings of isolation, loss of self-esteem, and feelings of hopelessness, which affected their physical well-being. Longer duration of unemployment increased the respondents’ negative emotions. The respondents reported activities, structure, and affiliation in other contexts as part of their coping strategy against poor mental health. Conclusions: After job loss, the respondents experienced feelings of loss of dignity and belonging as a human being. They also felt worry, insecurity, and stress due to their changed financial situation, which in turn led to isolation and loss of self-esteem. Social support and having other activities gave the respondents structure and meaning.

Keywords
Out of work; perceived wellbeing; qualitative approach; recession time
National Category
Health Sciences
Identifiers
urn:nbn:se:hig:diva-25315 (URN)10.4081/jphr.2017.995 (DOI)000440723600002 ()29291191 (PubMedID)2-s2.0-85038114572 (Scopus ID)
Available from: 2017-09-21 Created: 2017-09-21 Last updated: 2018-12-06Bibliographically approved
Mälstam, E., Bensing, S. & Asaba, E. (2017). Focusing on everyday life with Addison’s disease: Health promotion and secondary prevention. Paper presented at 10th European Public Health Conference Sustaining resilient and healthy communities, 1–4 November 2017, Stockholm, Sweden. European Journal of Public Health, 27(Suppl. 3), 334-334
Open this publication in new window or tab >>Focusing on everyday life with Addison’s disease: Health promotion and secondary prevention
2017 (English)In: European Journal of Public Health, ISSN 1101-1262, E-ISSN 1464-360X, Vol. 27, no Suppl. 3, p. 334-334Article in journal, Meeting abstract (Refereed) Published
Abstract [en]

The overal laim of this study was to generate knowledge about everyday life among people living with rare Addison’s disease (AD). Understanding experiences in contexts of everyday life are important for public health, equity in healthcare, and in order to design tailored health promotion programs, which are in line with EU policy. Addison’s disease is a rare disease and people with AD face challenges due to limited existing knowledge about the disease and often encounters health care providers who are not familiar with best practices in the area. Treatment and follow up of AD also vary greatly within Europe even though a European consensus exists and few reports of secondary and tertiary prevention have been published. AD is also usually monitored and treated in the specialist health care where individually delivered health care is dominant. In Sweden, it has been argued that all health care should integrate disease prevention and health promotion and that group-based self-management approaches could be compliments to traditional caring and curative health care. This study was conducted with qualitative methods and a participatory approach, engaging five participants with AD. Under seven weeks the participants photographed their everyday life and participated in weekly group-discussions. Preliminary results show that everyday life with AD can be more complex than previously thought and that extended information and self-management education about the disease and everyday life is perceived as important to maintain wellbeing. Also, participants perceived that health care could play a bigger role regarding health promotion and preventive actions through extended pharmacological and non-pharmacologica lparts of group-based interventions.

Key messages:

  • Specialist health care can play a role regarding preventive self-management schooling for persons with rare Addison’s disease to improve wellbeing in everyday life.
  • Specialist health care can play a role regarding health promotion and disease prevention through extended self-management education for persons with rare Addison’s diseas.
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
urn:nbn:se:hig:diva-25831 (URN)10.1093/eurpub/ckx189.082 (DOI)000414389803189 ()
Conference
10th European Public Health Conference Sustaining resilient and healthy communities, 1–4 November 2017, Stockholm, Sweden
Available from: 2017-12-19 Created: 2017-12-19 Last updated: 2018-03-13Bibliographically approved
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