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Bylund-Grenklo, ToveORCID iD iconorcid.org/0000-0002-4328-4539
Publications (2 of 2) Show all publications
Bylund-Grenklo, T., Werkander-Harstäde, C., Sandgren, A., Benzein, E. & Östlund, U. (2019). Dignity in life and care: The perspectives of Swedish patients in a palliative care context. International Journal of Palliative Nursing, 25(4), 193-201
Open this publication in new window or tab >>Dignity in life and care: The perspectives of Swedish patients in a palliative care context
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2019 (English)In: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 25, no 4, p. 193-201Article in journal (Refereed) Published
Abstract [en]

Background: How patients preserve their sense of dignity in life is an important area of palliative care that remains to be explored. Aims: To describe patients' perspectives of what constitutes a dignified life within a palliative care context. Methods: Twelve palliative care patients were interviewed about their views on living with dignity. Data were analysed using qualitative content analysis. Results: What constitutes a dignified life during end-of-life care was captured by the theme 'I may be ill but I am still a human being' and presented under the categories 'preserving my everyday life and personhood', 'having my human value maintained by others through 'coherence' and 'being supported by society at large'. Conclusion: Patients' sense of dignity can be preserved by their own attitudes and behaviours, by others and through public support. Health professionals need to adopt a dignity-conserving approach, for which awareness of their own attitudes and behaviours is crucial. 

Place, publisher, year, edition, pages
MA Healthcare Ltd, 2019
Care of the dying, Dignity, Health professionals, Palliative care, adult, article, awareness, clinical article, content analysis, female, human, human dignity, male, palliative therapy, personhood, Swedish citizen, terminal care
National Category
urn:nbn:se:hig:diva-30508 (URN)10.12968/ijpn.2019.25.4.193 (DOI)000464949000006 ()31013197 (PubMedID)2-s2.0-85064863576 (Scopus ID)
Available from: 2019-08-16 Created: 2019-08-16 Last updated: 2020-02-17Bibliographically approved
Birgisdóttir, D., Bylund-Grenklo, T., Nyberg, T., Kreicbergs, U., Steineck, G. & Fürst, C. J. (2019). Losing a parent to cancer as a teenager: Family cohesion in childhood, teenage, and young adulthood as perceived by bereaved and non-bereaved youths. Psycho-Oncology, 28(9), 1845-1853
Open this publication in new window or tab >>Losing a parent to cancer as a teenager: Family cohesion in childhood, teenage, and young adulthood as perceived by bereaved and non-bereaved youths
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2019 (English)In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 28, no 9, p. 1845-1853Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: The aim of this study was to investigate levels of perceived family cohesion during childhood, teenage years, and young adulthood in cancer-bereaved youths compared with non-bereaved peers.

METHODS: In this nationwide, population-based study, 622 (73%) young adults (aged 18-26) who had lost a parent to cancer 6 to 9 years previously, when they were teenagers (aged 13-16), and 330 (78%) non-bereaved peers from a matched random sample answered a study-specific questionnaire. Associations were assessed using multivariable logistic regression.

RESULTS: Compared with non-bereaved youths, the cancer-bereaved participants were more likely to report poor family cohesion during teenage years (odds ratio [OR] 1.6, 95% CI, 1.0-2.4, and 2.3, 95% CI, 1.5-3.5, for paternally and maternally bereaved youths, respectively). This was also seen in young adulthood among maternally bereaved participants (OR 2.5; 95% CI, 1.6-4.1), while there was no difference between paternally bereaved and non-bereaved youths. After controlling for a number of covariates (eg, year of birth, number of siblings, and depression), the adjusted ORs for poor family cohesion remained statistically significant. In a further analysis stratified for gender, this difference in perceived poor family cohesion was only noted in females.

CONCLUSION: Teenage loss of a parent to cancer was associated with perceived poor family cohesion during teenage years. This was also noted in young adulthood among the maternally bereaved. Females were more likely to report poor family cohesion. Our results indicate a need for increased awareness of family cohesion in bereaved-to-be families with teenage offspring, with special attention to gender roles.

adolescents, bereavement, cancer, family cohesion, oncology, parental death, teenagers, young adults
National Category
Other Medical Sciences
urn:nbn:se:hig:diva-30557 (URN)10.1002/pon.5163 (DOI)000476374500001 ()31250504 (PubMedID)2-s2.0-85069810215 (Scopus ID)
Swedish Cancer Society, 2008-758

Funding agency:

- Galo Foundation  - Kamprad Family Foundation for Entrepreneurship, Research and Charity  - Mats Paulssons Stiftelse  

Available from: 2019-08-22 Created: 2019-08-22 Last updated: 2020-02-17Bibliographically approved
ORCID iD: ORCID iD iconorcid.org/0000-0002-4328-4539

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