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When the body makes itself heard: the experience of bodily illness among people with neck-shoulder problems
Högskolan i Gävle, Centrum för belastningsskadeforskning. Department of Nursing, Umeå University, Umeå, Sweden.ORCID-id: 0000-0002-4364-467X
Department of Nursing, Umeå University, Umeå, Sweden.
Högskolan i Gävle, Centrum för belastningsskadeforskning.
2008 (engelsk)Inngår i: Advances in Physiotherapy, ISSN 1403-8196, E-ISSN 1651-1948, Vol. 10, nr 2, s. 85-94Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

The aim of this study was to explore the experience of bodily illness among people with musculoskeletal disorders (MSDs) in the neck/shoulder region. The study had a grounded theory approach, with constant comparisons and simultaneous data collection and analysis. Initially, parts of interviews about health experiences related to MSDs previously performed among men and women with musculoskeletal symptoms in the neck/shoulder and/or back were analysed. Next, complementary semi-structured interviews among men and women with neck/shoulder problems were performed, focusing on the experience of bodily illness, until saturation was reached. The results describe the experiences of bodily illness among people with MSDs in the neck/shoulder region as being characterized by uncontrollable fluctuations. The experiences are presented as a model of the disease course as experienced by the affected. The process usually developed from a beginning with insidious symptoms to a state of constant discomfort. Along the line of this development, periods of intermittent events of increasing illness occurred with peaks of consuming intensity. A variety of different symptoms was present during the process, which are presented in this paper. An increased knowledge of the disease course can be useful in prevention and treatment as communication about the disorder can be more specific.

sted, utgiver, år, opplag, sider
2008. Vol. 10, nr 2, s. 85-94
Emneord [en]
Bodily illness; Disease course; Experience; Fluctuations; Grounded theory; Inside perspective; Neck/shoulder disorders; Process; Qualitative method; Symptoms
HSV kategori
Identifikatorer
URN: urn:nbn:se:hig:diva-1900DOI: 10.1080/14038190701760627Scopus ID: 2-s2.0-45949089052OAI: oai:DiVA.org:hig-1900DiVA, id: diva2:118562
Tilgjengelig fra: 2008-05-29 Laget: 2008-05-29 Sist oppdatert: 2018-06-28bibliografisk kontrollert
Inngår i avhandling
1. Balancing intrusive illness: the experiences of people with musculoskeletal problems
Åpne denne publikasjonen i ny fane eller vindu >>Balancing intrusive illness: the experiences of people with musculoskeletal problems
2007 (engelsk)Doktoravhandling, med artikler (Annet vitenskapelig)
Abstract [en]

The overall aim of the present thesis was to explore and describe the health experiences of men and women with musculoskeletal problems. The specific aims of the four papers were: (I) to explore the experience of illness and wellness among ambulance personnel with musculoskeletal symptoms; (II) to explore the experience of illness and wellness among female health care personnel with musculoskeletal symptoms; (III) to explore the experience of bodily illness among people with musculoskeletal problems in the neck-shoulder region, and; (IV) to investigate the symptoms described by people with non-specific neck-shoulder problems, to investigate the method of development of neck-shoulder questionnaires that assesses pain and other symptoms, to analyse the content and items of these questionnaires, and to compare the findings.

The overall findings show that the occupationally active men and women with MSDs were “striving for balance” (I-II), that the disease course of chronic neck-shoulder disorders was characterised by “uncontrollable fluctuations” (III), and that most neck-shoulder questionnaires had a low correspondence to the variety of symptoms experienced during this course (IV). In the process of striving for balance (I-II), the informants’ health experiences were not a state of either wellness or illness, but of both, in varying degrees at different times. The balancing started when illness became too intrusive, and was a process of minimising the impact of illness by accepting and handling it, while attaining and maintaining wellness to feel well enough. When striving for balance, the interviewees kept on working to continue being nurtured at the same time as they made different efforts directed at minimising the impact of their illness. For both men and women, illness was characterised by disembodiment, vulnerability, and exhaustion. The illness experiences were counterbalanced by wellness, where some differences could be recognised between the men and the women. Study III further explored the experiences of bodily illness, focusing on people with chronic musculoskeletal disorders in the neck-shoulder region. The course of the disorder was described as characterised by uncontrollable fluctuations, and it usually developed from insidious symptoms to a state of constant discomfort. The participants experienced calmer periods during the course, but intermittent events of increasing illness were always lying in wait, with periodic moments of consuming intensity. In the interviews included in study IV a variety of symptoms were expressed, which indicated a bodily, mental, and emotional engagement, which included more general and more severe symptoms than are usually related to neck-shoulder disorders. Few of the questionnaires were developed using the experiences of the affected. Taken as a whole, did the questionnaires cover many of the symptoms of the interviewees, but each individual questionnaire only included a few. The fluctuations and nuances of symptoms were rarely considered. The correspondence between individual questionnaires and the experiences of those affected was most often low. This thesis reveals other aspects of health than just bodily experiences as important among occupationally active people with MSDs. It also provides a description of the disease course, and an indication of possibilities for improvement of neck-shoulder questionnaires

sted, utgiver, år, opplag, sider
Umeå: Umeå Universitet, 2007. s. 54
Serie
Umeå University medical dissertations, ISSN 0346-6612 ; 1106
Emneord
musculoskeletal problems, health experiences, illness, wellness, grounded theory, content analysis, balancing, disease course, uncontrollable fluctuations, symptoms
HSV kategori
Identifikatorer
urn:nbn:se:hig:diva-2741 (URN)978-91-7264-335-2 (ISBN)
Disputas
(engelsk)
Opponent
Veileder
Tilgjengelig fra: 2008-05-27 Laget: 2008-05-27 Sist oppdatert: 2018-06-28bibliografisk kontrollert

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