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Relationship quality and sense of coherence in dementia: results of a European cohort study
CEDOC, Nova Medical School/Faculdade de Ciências Médicas, Universidade Nova de Lisboa, Portugal.
Dementia Services Development Centre (DSDC) Wales, Bangor University, United Kingdom.
School of Nursing and Human Sciences, Dublin City University, Dublin, Ireland.
Dementia Services Development Centre (DSDC) Wales, Bangor University, United Kingdom.
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2019 (English)In: International Journal of Geriatric Psychiatry, ISSN 0885-6230, E-ISSN 1099-1166, Vol. 34, no 5, p. 745-755Article in journal (Refereed) Published
Abstract [en]

Objective: Quality of life of people with dementia and their family carers is strongly influenced by interpersonal issues and personal resources. In this context, relationship quality (RQ) and sense of coherence (SOC) potentially protect and promote health. We aimed to identify what influences RQ in dyads of people with dementia and their carers and to examine differences in their perspectives.

Methods: Cross-sectional data from the Actifcare cohort study of 451 community-dwelling people with dementia and their primary carers in eight European countries. Comprehensive assessments included the Positive Affect Index (RQ) and the Orientation to Life Questionnaire (SOC).

Results: Regression analyses revealed that RQ as perceived by people with dementia was associated with carer education, stress and spouse caregiving. RQ as perceived by carers was associated with carer stress, depression, being a spouse, social support, reported neuropsychiatric symptoms of dementia and carer SOC. Neuropsychiatric symptoms and carer stress contributed to discrepancies in RQ ratings within the dyad. The only factor associated with both individual RQ ratings and with discrepancies was carer stress (negative feelings sub-score). No significant differences in the overall perception of RQ were evident between spouses and adult children carers, but RQ determinants differed between the two.

Conclusions: In this European sample, carer SOC was associated with carer-reported RQ. RQ determinants differed according to the perspective considered (person with dementia or carer) and carer subgroup. A deeper understanding of RQ and its determinants will help to tailor interventions that address these distinct perspectives and potentially improve dementia outcomes.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019. Vol. 34, no 5, p. 745-755
Keywords [en]
Alzheimer's disease, dementia, dyadic perspective, family care, relationship quality, sense of coherence
National Category
Nursing Geriatrics
Identifiers
URN: urn:nbn:se:hig:diva-29376DOI: 10.1002/gps.5082ISI: 000465019800013PubMedID: 30729572Scopus ID: 2-s2.0-85062789270OAI: oai:DiVA.org:hig-29376DiVA, id: diva2:1295830
Available from: 2019-03-12 Created: 2019-03-12 Last updated: 2019-08-15Bibliographically approved

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