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The importance of peoples values and preferences in promoting colorectal cancer screening participation
Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Stockholm, Sweden.
University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences, Caring science.
Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Stockholm, Sweden.
Karolinska University Hospital, Stockholm, Sweden.
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(English)In: European Journal of Public Health, ISSN 1101-1262, E-ISSN 1464-360XArticle in journal (Refereed) Accepted
Abstract [en]

Background: To explore how individuals reason when they make decisions about colorectal cancer (CRC) screening participation from the perspective of participants and non-participants.

Methods: Individuals randomized to FIT or colonoscopy included in the Screening of Swedish Colons (SCREESCO) program were invited to focus group discussions and individual telephone interviews. The concept of shared decision-making (SDM: information; values/preferences; involvement) was used as a matrix for the analyses. To validate findings, additional focus group discussions using the nominal group technique were performed.

Results: The results covered the SDM concept. Lack of knowledge of CRC and CRC screening was prominent in both participants and non-participants, while the results differed between the groups in relation to their values and preferences. The influence of significant others promoted participation among participants while it prevented it among non-participants. Both participants and non-participants made it clear that there was no need to involve health care professionals when making their decision.

Conclusion: Based on the results, a display of different ways to promote knowledge and communication about CRC and CRC-screening, e.g. community-based information campaigns, decisions aids, interventions, such as interactive questionnaires, chat-functions and telephone support, should be provided. The disparity in values and preferences between participants and non-participants may be the key to understand why non-participants make their decisions not to participate and should be further explored.

Keyword [en]
Colorectal Neoplasms, Decision Making, Prevention and control, Qualitative research
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:hig:diva-23328OAI: oai:DiVA.org:hig-23328DiVA: diva2:1066573
Projects
SCREESCO, Karolinska University
Available from: 2017-01-18 Created: 2017-01-18 Last updated: 2017-11-29Bibliographically approved

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CiteExportLink to record
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Citation style
  • apa
  • harvard-cite-them-right
  • ieee
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  • sv-SE
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  • nn-NB
  • de-DE
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Output format
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