The importance of peoples values and preferences in promoting colorectal cancer screening participation
(English)In: European Journal of Public Health, ISSN 1101-1262, E-ISSN 1464-360XArticle in journal (Refereed) Accepted
Background: To explore how individuals reason when they make decisions about colorectal cancer (CRC) screening participation from the perspective of participants and non-participants.
Methods: Individuals randomized to FIT or colonoscopy included in the Screening of Swedish Colons (SCREESCO) program were invited to focus group discussions and individual telephone interviews. The concept of shared decision-making (SDM: information; values/preferences; involvement) was used as a matrix for the analyses. To validate findings, additional focus group discussions using the nominal group technique were performed.
Results: The results covered the SDM concept. Lack of knowledge of CRC and CRC screening was prominent in both participants and non-participants, while the results differed between the groups in relation to their values and preferences. The influence of significant others promoted participation among participants while it prevented it among non-participants. Both participants and non-participants made it clear that there was no need to involve health care professionals when making their decision.
Conclusion: Based on the results, a display of different ways to promote knowledge and communication about CRC and CRC-screening, e.g. community-based information campaigns, decisions aids, interventions, such as interactive questionnaires, chat-functions and telephone support, should be provided. The disparity in values and preferences between participants and non-participants may be the key to understand why non-participants make their decisions not to participate and should be further explored.
Colorectal Neoplasms, Decision Making, Prevention and control, Qualitative research
Medical and Health Sciences
IdentifiersURN: urn:nbn:se:hig:diva-23328OAI: oai:DiVA.org:hig-23328DiVA: diva2:1066573
ProjectsSCREESCO, Karolinska University