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Same same but different: En litteraturstudie om att leva med diabetes mellitus typ 1. Erfarenheter beskrivna av barn i åldern 6-18 år
University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences.
University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences.
2017 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
Abstract [sv]

Bakgrund: I Sverige insjuknar årligen 43 barn av 100000 i typ 1-diabetes (T1DM). Hos barn, som befinner sig i ett stadium av intellektuell och psykologisk utveckling, kan det finnas svårigheter att tillämpa den ideala terapeutiska behandlingen. Denna aspekt är något som särskilt måste beaktas av sjuksköterskan. De komplikationer som kan uppstå vid obehandlad diabetes skapar lidande för både individen, familjen och samhället.

Syfte: Beskriva vilka erfarenheter barn i åldern 6-18 år har av att leva med diabetes mellitus typ 1 samt beskriva vilka datainsamlingsmetoder som använts i de utvalda vetenskapliga artiklarna.

Metod: En deskriptiv litteraturstudie. Tema, kategorier och datainsamlingsmetoder har identifierats i elva kvalitativa artiklar och sammanställts.

Huvudresultat: I samtliga artiklar som redovisas i resultatet framträdde ett tydligt tema – erfarenheten att vara annorlunda. Erfarenheter av att lära sig hantera egenvård i vardagen gestaltades av barn som utmanande. Barns erfarenheter i relation till vården beskrevs som opersonliga. Utifrån den metodologiska frågeställningen framkom det att majoriteten av de inkluderade studierna använde intervjuer som datainsamlingsmetod.

Slutsats: Barn i 6-18 årsåldern inhämtade snarlika erfarenheter av att leva med T1DM. Temat ”same same but different” var tydligt övergripande i artiklarna och avspeglar barnens erfarenheter att uppfatta sig “annorlunda” mot andra, från omgivningen eller bara i sitt eget sinne. Upplevelsen att vara “annorlunda” satte sin prägel på sociala- och vårdrelationer och äventyrade hantering av egenvård. Sjuksköterskan bör förankra sitt vårdande arbete till barns unika erfarenheter av att leva med sjukdomen och skräddarsy en vårdstrategi utifrån det individuella barnet.

Abstract [en]

Background: Annually in Sweden, 43 children out of 100,000 are affected by type 1 diabetes (T1DM). Children, who are in a state of intellectual and psychological development, can have difficulties to apply the ideal therapeutic treatment. This aspect must be given particular consideration by the nurse. The complications that occur due to untreated diabetes, cause suffering for the individual, their family and the society.

Purpose: Describe what experiences children in the age of 6-18 years have of living with diabetes mellitus type 1 as well as describe what methods of data collection have been used in the included articles.

Method: A descriptive literature study. Theme, categories and data collection methods have been identified in eleven qualitative articles and compiled.  

Main result: In all the articles presented in the result a clear theme appeared – the experience of being different. Experiences of learning how to manage self-care in the daily life were by the children described as challenging. Children's experiences in relation to the care were described as impersonal. Based on the methodological issue, it emerged that most of the included studies used interviews for their data collection.

Conclusion: Children in the age of 6-18 years gathered similar experiences of living with T1DM. The theme "same same but different" was general in the articles and reflect the children's experiences of being perceived as "different" to others, from the environment or only in their own mind. The experience of being "different" put its stamp on the social and health relationships and jeopardized the management of self-care. The nurse should anchor their caring work to children’s unique experiences of living with the disease and tailor a treatment strategy based on the children’s individual needs.

Place, publisher, year, edition, pages
2017. , 30 p.
Keyword [en]
Children, diabetes mellitus type 1, experiences
Keyword [sv]
Barn, diabetes mellitus typ 1, erfarenheter
National Category
Nursing
Identifiers
URN: urn:nbn:se:hig:diva-23890OAI: oai:DiVA.org:hig-23890DiVA: diva2:1089213
Subject / course
Nursing
Educational program
Nursing
Supervisors
Examiners
Available from: 2017-05-03 Created: 2017-04-18 Last updated: 2017-05-03Bibliographically approved

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Citation style
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