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Upplevelsen av att vara anhörigvårdare till personer med Alzheimers sjukdom.: en litteraturstudie
University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences.
University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences.
2017 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
Abstract [sv]

Bakgrund: Vid Alzheimers sjukdom försämras de kognitiva funktionerna vilket innebär svåra psykiska och sociala funktionsnedsättningar. Det finns inget botemedel för Alzheimers sjukdom och dess sjukdomsförlopp är långdraget med upp till 10–15 år och leder sedermera att personen avlider. I tidiga skeden av Alzheimers sjukdom riskerar anhöriga förbinda sig med orimliga åtaganden utan tanke på sjukdomens progression och det ökande vårdbehovet.

Syfte: Syftet med denna studie var att beskriva upplevelsen av att vara anhörigvårdare till personer med Alzheimers sjukdom samt granska datainsamlingsmetoden i de valda artiklarna.

Metod: Föreliggande studie var en beskrivande litteraturstudie med deskriptiv design som baserades på 12 artiklar med både kvalitativ och kvantitativ ansats. Materialet inhämtades genom sökningar i databasen PubMed.

Huvudresultat: Resultatet visar att anhörigvårdare till personer med Alzheimers sjukdom upplever känslor av oro, stress, ångest, skam och skuldkänslor vid vårdandet av sin anhörige. Dessa känslor upplevs som värre i relation med att sjukdomen progredierar och det ökade omvårdnadsbehovet leder till att anhörigvårdare känner rädsla över att bli utbrända och ett förlorat hopp om framtiden. Motsatsen till detta är anhörigvårdare med ett förhållningssätt att varje dag var unik och därför accepterande sin nya roll i livet. Detta gav anhörigvårdare högre livskvalitet och upplevde därmed mindre nivåer av ångest i vardagen som resulterade i hopp om framtiden.

Slutsats: Hur anhörigvårdaren upplever situationer som negativ eller positiv präglas av hur de hanterar och förhåller sig till situationer. Strategierna som används ger antingen ökad eller minskad stress och korrelerar med risken för att bli utbränd. 

Abstract [en]

Background: Alzheimer's disease is impaired cognitive functions, which means severe mental and social disabilities. There is no cure for Alzheimer's disease and its course is up to 10-15 years and subsequently leads to the person dies. In the early stages of Alzheimer's disease relatives commit themselves with excessive commitments with no thoughts given to the disease's progression and the increasing need for care. Within the health care the health professionals sees the problems associated with being a family caregiver and the risk of them becoming burned out.

Aim: The aim of this study was to describe the experience of being a family caregiver to people with Alzheimer’s disease and examine the data collection method in the selected articles.

Method: The present study was a literature study with a descriptive design based on 12 scientific articles with both qualitative and quantitative approach. The material was gathered through searches in the database PubMed.

Main results: The result shows that the family caregivers of people with Alzheimer's disease experience feelings of anxiety, stress, shame and guilt when caring for their loved one. These feelings are experienced as worse in relation with the disease progresses and the increased need for nursing leads to that the family caregivers feel fear of becoming burned out and feel lost hope for the future. The opposite of this is family caregivers with an attitude that every day was unique and therefore accepting their new role in life. This gave the family caregivers a higher quality of life and thus less experienced levels of anxiety in everyday life that resulted in feeling hope for the future.

Conclusion: The experience of the family caregivers could either be positive or negative in managing of a person with Alzheiemer’s disease. The way of managing characterized how the family caregiver relates to situations. The managing of the strategys either reduce or induce levels of stress and correlates with the risk of being bournt-out. 

Place, publisher, year, edition, pages
2017. , [30], 9 p.
Keyword [en]
Alzheimer's disease, family caregiver, experience, adaption
Keyword [sv]
Alzheimers sjukdom, Anhörigvårdare, upplevelse, anpassning
National Category
Nursing
Identifiers
URN: urn:nbn:se:hig:diva-23948OAI: oai:DiVA.org:hig-23948DiVA: diva2:1092183
Subject / course
Nursing
Educational program
Nursing
Supervisors
Examiners
Available from: 2017-05-05 Created: 2017-05-01 Last updated: 2017-05-05Bibliographically approved

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