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Perspectives of policy and political decision makers on access to formal dementia care: expert interviews in eight European countries
Martin Luther University Halle-Wittenberg, Institute of Health and Nursing Sciences, Halle (Saale), Germany.ORCID iD: 0000-0003-2564-6521
Martin Luther University Halle-Wittenberg, Institute of Health and Nursing Sciences, Halle (Saale), Germany.
Martin Luther University Halle-Wittenberg, Institute of Health and Nursing Sciences, Halle (Saale), Germany.
Dublin City University, School of Nursing and Human Sciences, Dublin, Ireland.
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2017 (English)In: BMC Health Services Research, ISSN 1472-6963, E-ISSN 1472-6963, Vol. 17, no 1, 518Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: As part of the ActifCare (ACcess to Timely Formal Care) project, we conducted expert interviews in eight European countries with policy and political decision makers, or representatives of relevant institutions, to determine their perspectives on access to formal care for people with dementia and their carers.

METHODS: Each ActifCare country (Germany, Ireland, Italy, The Netherlands, Norway, Portugal, Sweden, United Kingdom) conducted semi-structured interviews with 4-7 experts (total N = 38). The interview guide addressed the topics "Complexity and Continuity of Care", "Formal Services", and "Public Awareness". Country-specific analysis of interview transcripts used an inductive qualitative content analysis. Cross-national synthesis focused on similarities in themes across the ActifCare countries.

RESULTS: The analysis revealed ten common themes and two additional sub-themes across countries. Among others, the experts highlighted the need for a coordinating role and the necessity of information to address issues of complexity and continuity of care, demanded person-centred, tailored, and multidisciplinary formal services, and referred to education, mass media and campaigns as means to raise public awareness.

CONCLUSIONS: Policy and political decision makers appear well acquainted with current discussions among both researchers and practitioners of possible approaches to improve access to dementia care. Experts described pragmatic, realistic strategies to influence dementia care. Suggested innovations concerned how to achieve improved dementia care, rather than transforming the nature of the services provided. Knowledge gained in these expert interviews may be useful to national decision makers when they consider reshaping the organisation of dementia care, and may thus help to develop best-practice strategies and recommendations.

Place, publisher, year, edition, pages
2017. Vol. 17, no 1, 518
Keyword [en]
Access to formal dementia care, Dementia, Expert interviews
National Category
Nursing
Identifiers
URN: urn:nbn:se:hig:diva-24878DOI: 10.1186/s12913-017-2456-0ISI: 000407074700002PubMedID: 28774307Scopus ID: 2-s2.0-85026838647OAI: oai:DiVA.org:hig-24878DiVA: diva2:1134125
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare
Available from: 2017-08-18 Created: 2017-08-18 Last updated: 2017-12-07Bibliographically approved

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CiteExportLink to record
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