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Att leva med fibromyalgi: En litteraturstudie
University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences, Caring science.
University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences, Caring science.
2017 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
Abstract [en]

Background: About 2 percent of people in the world suffers from Fibromyalgia, out of them about 80 percent are women. Common symptoms are pain over a long period of time. Why this illness occurs is still unknown. Other characteristic features of this illness is fatigue, soreness and cognitive problems, such as forgetfulness.  

Aim: The aim of this literature review was to describe the experience of living with fibromyalgia and to describe the method of data collection in the included articles.

Method: Literature review with descriptive design. 13 qualitative articles were included. The articles were acquired through searches in the databases Cinahl and Medline by PubMed.  

Main Results: People with fibromyalgia experienced that the pain and fatigue, that their illness caused, changed just about everything in their daily life. Most of them experienced that their psychological well being and social life were affected negatively by the illness. To not be believed or received well by people they met or by healthcare professionals was described as a big problem that happened far too often. This literature review also describe the method of data collection used in the included articles. Eleven out of thirteen articles used interviews as the method for data collection. One article used a questionnaire, and one article used focus group discussion.

Conclusions: Descriptions of experiences of living with fibromyalgia has shown that it affects these persons on many levels of their life, both physically, psychologically and socially. The pain and fettique hinders them in their day to day life.  They experience that they are not believed or taken seriously in their daily life, nor in the encounters with healthcare professionals. 

Abstract [en]

Bakgrund: I världen lider cirka 2 procent av befolkningen av fibromyalgi och 80 procent av dessa är kvinnor. De vanligaste symtomen är långvarig smärta med fortfarande okänd orsak till varför sjukdomen uppkommer. Sjukdomen karaktäriseras av onaturlig trötthet, ömhet och kognitiva besvär som att till exempel glömska.

Syfte: Syftet med denna litteraturstudie var att beskriva upplevelsen av att leva med fibromyalgi, samt att beskriva de inkluderade artiklarnas datainsamlingsmetod.

Metod: En litteraturstudie med deskriptiv design. Tretton kvalitativa artiklar inkluderades, dessa söktes genom databaserna Cinahl och Medline via PubMed.

Huvudresultat: Många av personerna med fibromyalgi upplevde att smärtan och orkeslösheten från deras sjukdom förändrade i stort sett allt i deras vardagliga liv. De flesta upplevde att deras psykiska mående samt sociala liv påverkats negativt av sjukdomen. Att inte bli betrodd eller mottagen på ett bra sätt av människor de mötte samt sjukvårdspersonal beskrev personerna i flera av studierna som ett stort problem och allt för vanligt förekommande. Föreliggande litteraturstudie beskrev även vilken datainsamlingsmetod som användes. I elva av de tretton artiklarna användes intervju som datainsamlingsmetod. Av de resterande två använde sig en av ett formulär och den andra fokusgrupp diskussion.

Slutsats: Beskrivningar av upplevelser att leva med fibromyalgi, har visat att den påverkar personerna på många plan i livet, både fysiskt, psykiskt och socialt. Smärtan och tröttheten hindrar dem i det dagliga livet och de upplever att de inte blir betrodda eller tagna på allvar både i vardagen, men även i mötet med hälso- och sjukvårdspersonal. 

Place, publisher, year, edition, pages
2017. , p. 29
Keywords [en]
Fibromyalgia, experience, daily life
Keywords [sv]
Fibromyalgi, Upplevelse, dagliga livet
National Category
Nursing
Identifiers
URN: urn:nbn:se:hig:diva-25929OAI: oai:DiVA.org:hig-25929DiVA, id: diva2:1170853
Subject / course
Nursing
Educational program
Nursing
Supervisors
Examiners
Available from: 2018-01-11 Created: 2018-01-04 Last updated: 2018-01-11Bibliographically approved

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