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Livskvalitet hos personer med Amyotrofisk lateralskleros (ALS) - En litteraturstudie
University of Gävle, Department of Caring Sciences and Sociology.
University of Gävle, Department of Caring Sciences and Sociology.
2008 (English)Independent thesis Basic level (degree of Bachelor), 10 points / 15 hpStudent thesis
Abstract [sv]

Syftet med denna studie var att beskriva hur människor med Amyotrofisk lateralskleros (ALS) upplever sin livskvalitet. Metoden som användes var en litteraturstudie med beskrivande design. Olika kombinationer av sökorden ”ALS”, ”amyotrophic lateral sclerosis” ”quality of life”, och ”människor” användes vid sökning i databaserna Medline (PubMed) och Science Direct. Totalt analyserades tretton vetenskapliga artiklar som sedan kvalitetsbedömdes och kategoriserades i fyra kategorier: fysisk, psykisk, social och existentiell livskvalitet. Forskning kring de fysiska aspekterna av livskvalitet visade att det främst är den nedsättande funktionsförmågan och begränsningarna relaterade till sjukdomen som bidrar till det fysiska lidandet. Med tiden ändrades patienternas intressen från mer aktiva till passiva. Till skillnad från detta var upplevelsen av det psykiska lidandet mycket låg. Resultat tillhörande den sociala aspekten visade att patienternas förhållande med familj och vänner var av störst värde för att uppleva livskvalitet samt det främsta stödet för att bemästra de svårigheter som sjukdomen medför. Patienternas religiösa tro och tillgång till präst var av betydande roll vad gällande bemästringen av existentiella frågor och funderingar.

Abstract [en]

The purpose of this study was to describe how people with Amyotrophic lateral sclerosis (ALS) experience their quality of life. The method used was a study of literature with design description. A various combination of search words, such as “amyotrophic lateral sclerosis”, “ALS”, “quality of life” and “people” were used in searching the computer bases Medline (Pubmed) and Science Direct. In total, thirteen scientific articles were analysed and quality tested, subsequently they were categorized into four categories: physical, mental, social and existential quality of life. Research into the physical aspects surrounding the quality of life showed that it is, above all, the disparaging functional capabilities and restrictions related to the illness which causes the mental suffering. In time, the patients interests changed from active to passive. In contrast to this, the experience of mental suffering was very low. Results of the studies into the social aspects showed that the patients relationship with family and friends was of the greatest value to quality of life, as well as the foremost support towards conquering the difficulties which the illness causes. The patients religious beliefs and access to a priest, play a significant part regarding the conquering of existential questions and thoughts.

Place, publisher, year, edition, pages
2008. , p. 26
Keywords [en]
Amyotrophic lateral sclerosis, ALS, quality of life, people
Keywords [sv]
Amyotrofisk lateralskleros, ALS, livskvalitet, människor
National Category
Nursing
Identifiers
URN: urn:nbn:se:hig:diva-749Archive number: SSKVk06/ht08nr14OAI: oai:DiVA.org:hig-749DiVA, id: diva2:120338
Uppsok
samhälle/juridik
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Available from: 2008-10-14 Created: 2008-10-14

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CiteExportLink to record
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Citation style
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