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Sjuksköterskors erfarenhet av att ge palliativ omvårdnad till barn: En beskrivande litteraturstudie
University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences.
University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences.
2018 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
Abstract [sv]

Bakgrund: Palliativ vård innebär att bekräfta livet och beakta döden som en normal process. Fysiskt, psykiskt och andligt lidande skall lindras och livskvalitet främjas hos patienten och hens anhöriga. Sjuksköterskors roll i den palliativa vården omfattade flera dimensioner av omvårdnad. Familjen till barn som vårdas palliativt menar att sjuksköterskor ska vara ärliga, genuina och arbeta självsäkert. Barn önskar bli respekterade som individ genom att sjuksköterskor skapar en relation med hen.

Syfte: Syftet var att beskriva sjuksköterskors erfarenheter av att ge palliativ omvårdnad till barn.

Metod: Litteraturstudien har en beskrivande design som baseras på 13 artiklar.

Huvudresultat: Sjuksköterskor menade att för en god omvårdnad av hela barnet var relation till barnet och familjen viktig. Samt att främja relationer inom familjen. Sjuksköterskor beskrev emotionella erfarenheter såsom sorg, hjälplöshet, moralisk stress och etiska dilemman. De beskrev även att de fann inspiration och mening i den palliativa omvårdnaden av barn. Sjuksköterskor återgav olika strategier för att hantera död och döende. De upplevde en osäkerhet och kunskapsbrist i palliativ vård av barn samt berättade hur de inhämtade kunskap. Vidare beskrev sjuksköterskor deras professionella och privata roll samt deras erfarenhet av att hantera samtal om döden. Undersökningsgruppen granskades utifrån Undersökningsgruppens ursprungsland, Antal deltagare, Kön, Arbetsplats och Erfarenhet inom palliativ vård.

Slutsats: För att ge god palliativ omvårdnad till barn krävdes en nära relation mellan sjuksköterskor, barnet och familjen. Vårdandet innebar emotionella påfrestningar för sjuksköterskor. Okunskap i att ge palliativ omvårdnad upplevdes. Genom mer kunskap kan sjuksköterskor ges förutsättningar att kunna ge en holistisk palliativ vård till barn.

 

 

 

Abstract [en]

Background: Palliative care means acknowledge to life and heed the death as a normal process of life. Physical, psychic and spiritual suffering shall be alleviated and foster the quality of life at the patient and the family. Palliative care comprises several dimensions of nursing. The dying child´s family mean that the nurse should be honest, genuine and work confidently. Children wish to be respected through the relationship the nurse establishes with the child.

Aim: The aim of this literature study was to describe the experiences of nurses giving palliative care to children.  

Method: A descriptive design was used based on thirteen articles to answer the aim and problem contention of the literature review.

Main result: Nurses intended that the relationship to the child and the family were important to provide good care to the child. And promote relations within the family. Nurses witnessed emotional experiences as sadness, helplessness and moral stress. They described the ability to find inspiration and meaning. They described strategies to handle death and uncertainty and lack of knowledge about palliative care and how they obtained knowledge. Nurses described their professional and private role and how they manage conversations about death. The group examination was examined as follow; Country of origin, Number of participants, Gender, Workplace and Experience in palliative care.

Conclusion: To provide a good palliative care for the child a close relationship between the nurse, child and family were required. The nursing implies emotional stress and lack of knowledge in giving palliative care were experienced. Through more knowledge nurses can be given prerequisites to give holistic palliative care.

 

Place, publisher, year, edition, pages
2018. , p. 35
Keywords [en]
Children, Experience, Nurse, Palliative care
Keywords [sv]
Barn, Erfarenheter, Palliativ vård, Sjuksköterska
National Category
Nursing
Identifiers
URN: urn:nbn:se:hig:diva-28991OAI: oai:DiVA.org:hig-28991DiVA, id: diva2:1274001
Subject / course
Nursing
Educational program
Nursing
Supervisors
Examiners
Available from: 2019-01-03 Created: 2018-12-27 Last updated: 2019-01-03Bibliographically approved

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