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Erfarenheter av diagnosticering samt anpassning till livet med Multipel skleros utifrån ett patientperspektiv: En litteraturstudie
University of Gävle, Faculty of Health and Occupational Studies, Department of Caring Science.
University of Gävle, Faculty of Health and Occupational Studies, Department of Caring Science.
2020 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Experiences of being diagnosed with MS and adapting to life with the disease. (English)
Abstract [sv]

Bakgrund: Multipel skleros (MS) är en kronisk, inflammatorisk och autoimmun sjukdom som bidrar till en rad konsekvenser i vardagen för den drabbade. Syfte: Syftet med denna litteraturöversikt var att beskriva personers erfarenheter av att diagnostiseras med MS och anpassning till livet med sjukdomen. Metod: En deskriptiv design med en kvalitativ ansats användes vid val av litteratur. Databassökningar utfördes med hjälp av databaserna PubMed, CINAHL och PsycINFO där anpassade sökord, begränsningar, inklusionskriterier och exklusionskriterier tillämpades. Huvudresultat: Litteratursammanställningen resulterade i ett huvudtema och fyra underteman: Huvudtemat var “Framtiden: Ett oförutsägbart liv”, och dess fyra underteman var 1) Diagnosen: en tid av ovetande & den förrädiska kroppen. 2) Roller: Hemma, på arbetet & i sociala sammanhang. 3) Stigmatisering: skam & missuppfattningar. 4) Fokusskifte & coping: Emotioner, problemlösande & meningsskapande. Slutsats: Slutsatsen av detta arbete var att sjuksköterskans bemötande gentemot patienten med MS spelar en avgörande roll. Med en holistisk syn på hälsa och en salutogen inställning vid mötet så kan det friska hos personen främjas, samtidigt som det sjuka behandlas, vilket kan bidra till en ökad upplevelse av hälsa. Nyckelord: Anpassning, Erfarenheter, Hälsa, Multipel skleros, Patientperspektiv.

Abstract [en]

Multiple sclerosis (MS) is a chronic, inflammatory and autoimmune disease that contributes to a range of consequences in the everyday life of the affected person. Purpose: The purpose of this literature review was to describe people's experiences of being diagnosed with MS and adapting to life with the disease. Method: A descriptive design with a qualitative approach was used in the selection of literature. Database searches were performed using the PubMed, CINAHL and PsycINFO databases where custom keywords, restrictions, inclusion criteria and exclusion criteria were applied. Main results: The compilation of literature resulted in one main theme and four subthemes: The main theme was “The future: An unpredictable life.”, and the four subthemes were as follows 1) The diagnosis: a time of ignorance & the treacherous body. 2) Roles: At home, at work & in public. 3) Stigmatization: shame & misconceptions. 4) Shift in focus & coping: Emotions, problem solving & finding meaning. Conclusion: The conclusion of this literature review was that the nurse’s approach towards the patient with MS plays a crucial role. With a holistic view of health and a salutogenic attitude when meeting the patient, the healthy aspects of the person can be promoted, while at the same time treating the sick aspects, which can contribute to an increased experience of health.

Place, publisher, year, edition, pages
2020. , p. 35
National Category
Nursing
Identifiers
URN: urn:nbn:se:hig:diva-32376OAI: oai:DiVA.org:hig-32376DiVA, id: diva2:1434573
Subject / course
Nursing
Educational program
Nursing
Supervisors
Examiners
Available from: 2020-06-03 Created: 2020-06-03 Last updated: 2020-06-03Bibliographically approved

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