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Daily life of persons with dementia and their spouses supported by a passive positioning alarm
University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences. Örebro University, Örebro, Sweden.ORCID iD: 0000-0002-6381-1922
2013 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim was to describe how persons with dementia (PwDs) reflecton being outdoors and to investigate the support provided by a passivepositioning alarm (PPA) in making daily life safer for PwDs and theirspouses.

Repeated conversations were held with 11 PwDs living in their own homesregarding their reflections on being outdoors (Study I). Interview study with14 spouses to a person with dementia (PwD) with their reflections on differentkinds of information and communication technology (ICT) devicesthat were used or can be used in the daily care of PwDs (Study II). An ethnographicapproach with participant observations and conversations withfive couples, a PwD and his/her spouse, describing and exploring their useand experiences of using a PPA, over time, in daily life (Study III). An experimentalsingle-case ABAB-design with three cases, a PwD and hisspouse, investigating the effects of using tracking technology on independentoutdoor activities and psychological well-being (Study IV).

In summary, the results of the thesis show that being outdoors was describedby the PwDs as a confirmation of their identity, the `Self´. The useof ICT in daily care of PwDs was described by the spouses as shifting betweentheir own needs for safety and security and the perceived need forsafety and security from the perspective of the PwD. The use of a PPA indaily life among PwDs living in their own homes can give a sense of freedom,support and strengthen the feeling of independence for both PwDsand their spouses as well as give a feeling of safety and security for themboth. Use of the PPA may also increase PwDs’ independent outdoor activitiesand decrease spouses’ worries.

Place, publisher, year, edition, pages
Örebro: Örebro universitet , 2013. , 81 p.
Series
Örebro Studies in Caring Sciences, ISSN 1652-1153 ; 44
Keyword [en]
Information and communication technology (ICT), person with dementia (PwD), spouses, outdoor activities, experimental single-case, interviews, participant observation, qualitative research, passive positioning alarm (PPA)
National Category
Medical and Health Sciences Nursing
Identifiers
URN: urn:nbn:se:hig:diva-15218ISBN: 978-91-7668-925-7 (print)OAI: oai:DiVA.org:hig-15218DiVA: diva2:647964
Public defence
2013-05-22, Hörsal P2, Örebro Universitet, 701 82, Örebro, 08:14 (Swedish)
Opponent
Supervisors
Projects
Electronic tracking system in dementia care
Note

Medicine doktor

Available from: 2013-10-03 Created: 2013-09-13 Last updated: 2016-01-22Bibliographically approved
List of papers
1. A passive positioning alarm used by persons with dementia and their spouses: a qualitative intervention study
Open this publication in new window or tab >>A passive positioning alarm used by persons with dementia and their spouses: a qualitative intervention study
2013 (English)In: BMC Geriatrics, ISSN 1471-2318, E-ISSN 1471-2318, Vol. 13, no 11, 1-9 p.Article in journal (Refereed) Published
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hig:diva-14038 (URN)10.1186/1471-2318-13-11 (DOI)000317416300001 ()2-s2.0-84873243490 (Scopus ID)
Projects
Electronic tracking system in dementia care
Available from: 2013-04-17 Created: 2013-04-04 Last updated: 2016-01-22Bibliographically approved
2. My, your and our needs for safety and security: relatives’ reflections on using information and communication technology in dementia care
Open this publication in new window or tab >>My, your and our needs for safety and security: relatives’ reflections on using information and communication technology in dementia care
2012 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 26, no 1, 104-112 p.Article in journal (Refereed) Published
Keyword
burden, dementia, information and communication technology, nursing, relatives, qualitative content analysis
National Category
Nursing
Identifiers
urn:nbn:se:hig:diva-9992 (URN)10.1111/j.1471-6712.2011.00916.x (DOI)000300567200014 ()21843198 (PubMedID)2-s2.0-84857043019 (Scopus ID)
Available from: 2011-09-01 Created: 2011-09-01 Last updated: 2016-01-22Bibliographically approved
3. Persons with early-stage dementia reflect on being outdoors: a repeated interview study
Open this publication in new window or tab >>Persons with early-stage dementia reflect on being outdoors: a repeated interview study
2013 (English)In: Aging & Mental Health, ISSN 1360-7863, E-ISSN 1364-6915, Vol. 17, no 7, 793-800 p.Article in journal (Refereed) Published
Abstract [en]

Objectives:The aim of this study was to describe how persons with early-stage dementia reflect on being outdoors.

Method: Data were collected through repeated interviews with a purposive sample of 11 persons with early-stage dementia in Sweden during the period 2009–2010 and were analysed using qualitative content analysis.

Results: Informants described being outdoors as a confirmation of the self. Confirmation of their ability to maintain desired activities, despite the dementia disease, was important to the informants. However, some confirmations were not positive; the realisation that one could no longer perform certain activities could be devastating. Two sub-themes emerged: shifting between ‘still being part of it all’ and a sense of grief and loss and striving to keep on despite perceived barriers. Past, but no longer possible, outdoor activities were greatly missed and the informants longed to be able to perform these activities once again. To resolve possible difficulties associated with being outdoors, the informants used various adaptation strategies. Despite the described barriers, being outdoors was of great value to them.

Conclusion: Independent outdoor activities seem to contribute to the well-being and feelings of self-worth among persons with early-stage dementia who want to be and are able to be outdoors. If a person with dementia, despite cognitive limitations, wants and is able to engage in outdoor activities, it is important for relatives and health-care staff to encourage and facilitate this, for example, by discussing adaptation strategies to deal with orientation problems.

Keyword
activities, early-stage dementia, nursing, outdoors, social construction theory
National Category
Nursing
Identifiers
urn:nbn:se:hig:diva-15142 (URN)10.1080/13607863.2013.801065 (DOI)000323476600003 ()23701394 (PubMedID)2-s2.0-84883657556 (Scopus ID)
Projects
Electronic tracking system in dementia care
Available from: 2013-09-06 Created: 2013-09-06 Last updated: 2016-01-22Bibliographically approved

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