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Quality of life and life satisfaction among adults with and without congenital heart disease in a developing country
Mittuniversitetet, Avdelningen för hälsovetenskap och Tehran Heart Center, Tehran University of Medical Sciences.
University of Gävle, Faculty of Health and Occupational Studies, Department of Occupational and Public Health Sciences. Mittuniversitetet, Institutionen för hälsovetenskap och Karolinska institutet.
Mittuniversitetet, Avdelningen för psykologi.ORCID iD: 0000-0002-4116-5501
Karolinska Institutet; University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
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2015 (English)In: European Journal of Preventive Cardiology, ISSN 2047-4873, E-ISSN 2047-4881, Vol. 22, no 2, 169-179 p.Article in journal (Refereed) Published
Abstract [en]

Background Life-expectancy of adults with congenital heart disease (CHD) has improved world-wide, but there are limited data on these patients' experiences of quality of life (QoL), life satisfaction (LS), and their determinants (e.g. social support), particularly among patients from developing countries.

Design Cross-sectional case-control.

Methods A total of 347 CHD patients (18-64 years, 52.2% women) and 353 non-CHD participants, matched by sex/age, were recruited from two heart hospitals in Tehran, Iran. LS and QoL served as dependent variables, and demographic/socioeconomic status, mental-somatic symptoms, social support, and clinical factors (e.g. defect category) served as independent variables in multiple regression analyses once among all participants, and once only among CHD patients.

Results The CHD patients had significantly lower scores in LS and all domains of QoL than the control group. However, having CHD was independently negatively associated only with overall QoL, physical health, and life and health satisfaction. Additionally, multivariate analyses among the CHD patients revealed that female sex, younger age, being employed, less emotional distress, and higher social support were significantly associated with higher perceived QoL in most domains, while LS was associated with female sex, being employed, less emotional distress, and better social support. Neither QoL nor LS was associated with cardiac defect severity.

Conclusions The adults with CHD had poorer QoL and LS than their non-CHD peers in our developing country. Socio-demographics, emotional health, and social support were important 'determinants' of QoL and LS among the CHD patients. Longitudinal studies are warranted to establish causal links.

Place, publisher, year, edition, pages
2015. Vol. 22, no 2, 169-179 p.
Keyword [en]
Grown-up congenital heart disease, heart defect, mental health, psychosocial, social support
National Category
Public Health, Global Health, Social Medicine and Epidemiology
Identifiers
URN: urn:nbn:se:hig:diva-16039DOI: 10.1177/2047487313514017ISI: 000348115400004PubMedID: 24249839Scopus ID: 2-s2.0-84920942176OAI: oai:DiVA.org:hig-16039DiVA: diva2:688773
Available from: 2013-11-02 Created: 2014-01-17 Last updated: 2015-11-19Bibliographically approved

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