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  • 1.
    Azar , Jonny
    et al.
    University of Gävle, Department of Caring Sciences and Sociology, Ämnesavdelningen för vårdvetenskap.
    Snickars, Sophie
    University of Gävle, Department of Caring Sciences and Sociology, Ämnesavdelningen för vårdvetenskap.
    Hur ungdomar med cancer hanterar sin sjukdom och vad de har för livskvalitet: en litteraturstudie2009Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    The aim of this literature study was to investigate how adolescents with cancer cope with there disease and how it effect their quality of life (QoL). This study was a descriptive literature study were the authors searched for scientific articles in the databases Medline, Cinahl, SweMed+ and PsykInfo. The result is based on fifteen articles. The result showed that social support such as parents and a special friend is important for the adolescents' well-being. The adolescents also described that it felt god to have someone to talk to that was in the same situation. A positive attitude and humour helped the adolescents to cope with their disease. One way to escape from the disease was trying to feel normal, a way of doing that was to wear accessories, modern clothes and pushing their limits. The adolescents spent a lot of time in the hospitals thus made them isolated, which resulted in alienation. Changed body image, fear and alienation are all factors that influence on the adolescents QoL. It was showed that adolescents with cancer had lower QoL than healthy adolescents, but as time pass by their QoL increased. In general the girls hade better QoL than the boys.

  • 2.
    Bergström, Emma
    et al.
    University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences.
    Kärvin, Linnéa
    University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences.
    Att vara ett syskon till en bror eller syster med cancer2017Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    Bakgrund: Varje år insjuknar ca 320 barn mellan 0-18 år av cancer i Sverige vilket innebär att många syskon kan få en förändrad vardag. Cancer orsakas av att celler i kroppen börjar dela sig okontrollerat samt ökar i storlek, vilket resulterar i en cancertumör. Hur ett syskon reagerar när en bror eller syster får sin cancerdiagnos är beroende på ålder och tidigare erfarenheter. I mötet med ett sjukt barn och dess familj är det viktigt att som sjuksköterska stötta och hantera hela familjens upplevelser i den rådande situationen. Syfte: Syftet med studien var att beskriva syskons upplevelse av att ha en bror eller syster med cancer samt att studera de inkluderade artiklarnas undersökningsgrupp. Metod: En deskriptiv litteraturstudie som inkluderar elva vetenskapliga artiklar som söktes via databasen Medline via PubMed. Artiklarna analyserades med hjälp av Polit och Becks niostegsmodell för ett objektivt urval. Huvudresultat: Syskon som hade en bror eller syster med cancer upplevde många omställningar i livet, både emotionellt, fysiskt och psykiskt. Resultatet visar tre centrala stora upplevelser som syskonen upplevde, ”Känslosamma ögonblick”, “Att rätt information skapar trygghet” samt “Att leva i en förändrad tillvaro”. Undersökningsgrupperna i de inkluderade artiklarna var individer mellan 6-22 år och både pojkar och flickor samt att antalet varierade mellan 6-125 deltagare. Slutsats: Ett syskon till en bror eller syster med cancer upplever många känslor och förändringar samt påverkas av den nya tillvaron som uppstår efter cancerbeskedet. Detta innebär att familjesituationen, relationer och skolan påverkas på olika sätt.  

  • 3. Forinder, Ulla
    Stödgrupp för unga vuxna - ur ett anhörigperspektiv: ett vårdutvecklingsprojekt hos Cancerfonden 1999-2000 : slutrapport2001Report (Other academic)
    Abstract [sv]

    Rapporten beskriver ett projekt på Huddinge universitetssjukhus med syfte att skaffa kunskap om huruvida en gruppverksamhet är en lämplig stödform för unga anhöriga till cancerpatienter. Man anordnade en verksamhet med en grupp bestående av 5 ungdomar vars föräldrar var svårt och obotligt sjuka i cancer. Vid den åttonde och sista gruppträffen gjordes en utvärdering av gruppen. Samtliga inblandade var i stort sett mycket positiva. De deltagande ungdomarna tyckte att en gruppverksamhet fungerade mycket bra då det överskuggande behovet var att träffa andra som är i samma situation.

  • 4.
    Godskesen, Tove
    et al.
    Uppsala universitet, Centrum för forsknings- och bioetik.
    Kihlbom, Ulrik
    Uppsala universitet, Centrum för forsknings- och bioetik.
    Nordin, Karin
    Uppsala universitet; University of Bergen, Bergen, Norway.
    Silén, Marit
    Uppsala universitet, Vårdvetenskap.
    Nygren, Peter
    Uppsala universitet, Experimentell och klinisk onkologi.
    Differences in trial knowledge and motives for participation among cancer patients in phase 3 clinical trials2015In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 25, no 3, p. 516-523Article in journal (Refereed)
    Abstract [en]

    While participants in clinical oncology trials are essential for the advancement of cancer therapies, factors decisive for patient participation have been described but need further investigation, particularly in the case of phase 3 studies. The aim of this study was to investigate differences in trial knowledge and motives for participation in phase 3 clinical cancer trials in relation to gender, age, education levels and former trial experience. The results of a questionnaire returned from 88 of 96 patients (92%) were analysed using the Mann-Whitney U-test. There were small, barely relevant differences in trial knowledge among patients when stratified by gender, age or education. Participants with former trial experience were less aware about the right to withdraw. Male participants and those aged ≥65 years were significantly more motivated by a feeling of duty, or by the opinions of close ones. Men seem more motivated than women by external factors. With the awareness that elderly and single male participants might be a vulnerable group and participants with former trial experience are less likely to be sufficiently informed, the information consent process should focus more on these patients. We conclude that the informed consent process seems to work well, with good results within most subgroups.

  • 5.
    Jonsson, Ann-Sofie
    et al.
    University of Gävle, Department of Caring Sciences and Sociology, Ämnesavdelningen för vårdvetenskap.
    Roos, Peter
    University of Gävle, Department of Caring Sciences and Sociology, Ämnesavdelningen för vårdvetenskap.
    Livskvalitet hos patienter med pankreascancer: -en litteraturstudie2009Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    The purpose of this study was to describe the quality of life in patients with pancreatic cancer and to examine whether there were any factors that could affect patient’s quality of life. Searches were carried out in the databases Academic Search Elite and Medline. The keywords used were pancreatic cancer, quality of life and pancreatic neoplasm. Thirteen research articles were selected for the study results. These articles were reviewed, analyzed and compiled. The results showed that the quality of life was significantly impaired in patients with pancreatic cancer compared with a general population. Patients experienced several disturbing symptoms. Fatigue and pain were among the most prevalent symptoms and these could also be linked to reduced quality of life. Despite various interventions and treatments many of the patients did not experience any kind of improvement in quality of life. Some patients who stabilized their weight experienced better quality of life and survived longer than those who continued to lose weight. One group of patients with local cancer who underwent surgery showed a significantly improved quality of life after treatment. The patients who received radiation therapy with a radioactive drug experienced a significantly improved quality of life. More research is needed to get an understanding of how these groups of patients experience their quality of life and to offer interventions that can provide a better quality of life.

  • 6.
    Koyi, Hirsh
    et al.
    Department of Respiratory Medicine, Gävle Hospital, Gävle, Sweden; Karolinska Institutet, Stockholm, Sweden; Centre for Research and Development, Uppsala University/County Council of Gävleborg, Gävle, Sweden.
    Hillerdal, Gunnar
    Department of Respiratory Medicine and Allergy, Karolinska University Hospital, Solna, Stockholm, Sweden.
    Andersson, Olov
    Department of Respiratory Medicine and Allergy, Karolinska University Hospital, Solna, Stockholm, Sweden.
    Högberg, Hans
    University of Gävle, Faculty of Health and Occupational Studies, Department of Health and Caring Sciences, Caring science.
    Brandén, Eva
    Department of Respiratory Medicine, Gävle Hospital, Gävle, Sweden; Karolinska Institutet, Stockholm, Sweden; Centre for Research and Development, Uppsala University/County Council of Gävleborg, Gävle, Sweden.
    Lung cancer among native and foreign-born Swedes: histopathology, treatment, and survival2016In: Acta Oncologica, ISSN 0284-186X, E-ISSN 1651-226X, Vol. 55, no 11, p. 1344-1348Article in journal (Refereed)
    Abstract [en]

    Background: Lung cancer (LC) is the leading cause of cancer-related death worldwide, including Sweden. Several studies have shown that socioeconomic status affects the risk, treatment, and survival of LC. Due to immigration after Second World War, foreign-born people constitute 12.5% of the Swedish population. We wanted to investigate if there were any differences in LC management, treatment and survival among the foreign-born Swedes (FBS) compared to the native Swedish population (NatS) in Stockholm. Material and methods: A retrospective analysis of all patients diagnosed with non-small cell lung cancer (NSCLC) at the Department of Respiratory Medicine and Allergy, Karolinska University Hospital, Solna from 1 January 2003 to 31 December 2008 was made. In all, 2041 cases of LC were diagnosed, thereof 1803 with NSCLC. Of these, 211 (11.7%) were FBS. Results: The mean age of NatS and FBS patients was 69.9 years, median 70 (range 26–96) and 66.0 years, median 66 (range 38–94), respectively (p < 0.001). In all, 89.8% of NatS and 90.0% of FBS were either smokers or former smokers. Adenocarcinoma was the most common subtype in both groups (NatS 54.7%, FBS 48.3%). In 140 (8.8%) of the NatS and 17 (8.1%) of the FBS the diagnosis was clinical only. There were no significant differences in stage at diagnosis, nor in performance status (PS) or different therapies between the groups. The median overall survival time for the NatS was 272 days and for FBS 328 days, again no significant difference. However, the median overall survival time for female NatS was 318 days and for female FBS 681 days (p = 0.002). Conclusion: FBS patients were significantly younger than NatS at diagnosis, and female FBS lived longer than female NatS, but otherwise there were no significant differences between NatS and FBS patients with LC regarding diagnosis, treatment, and survival. 

  • 7.
    Lindahl Norberg, Annika
    et al.
    Department of Women’s and Children’s Health, Childhood Cancer Research Unit, Karolinska Institutet, Stockholm, Sweden, 2 U-CARE/Psychosocial Oncology and Supportive Care, Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.
    Mellgren, Karin
    Department of Pediatrics, Institution for Clinical Sciences, University of Gothenburg, Gothenburg, Sweden,.
    Winiarski, Jacek
    Department of Clinical Science, Intervention and Technology, Astrid Lindgren Children’s Hospital, Karolinska Institutet, Karolinska University Hospital Huddinge, Stockholm, Sweden.
    Forinder, Ulla
    Nordiska ministerrådet, Nordic School of Public Health NHV.
    Relationship between problems related to child late effects and parent burnout after pediatric hematopoietic stem cell transplantation2014In: Pediatric Transplantation, ISSN 1397-3142, E-ISSN 1399-3046, Vol. 18, no 3, p. 302-309Article in journal (Refereed)
    Abstract [en]

    A few studies have indicated that parents’ reactions to achild’s serious disease may entail long-term stress for the parents.However, further knowledge of its consequences is valuable. The aim ofthe study was to investigate the occurrence of burnout in a Swedishnational sample of parents of children who had undergone HSCT andsurvived. Burnout (Shirom–Melamed Burnout Questionnaire) andestimations of the child’s health status (Lansky/Karnofsky estimationsand study-specific questions) were self-reported by 159 mothers and 123fathers. In addition, physicians made estimations of the child’s healthstatus (Lansky/Karnofsky estimations). Nonparametric tests revealedthat burnout symptoms occurred more often among fathers of childrenwho had undergone transplantation within the last five yr compared tofathers of children with no history of serious disease (34.4% vs. 19.9%).Burnout among mothers and fathers was associated with the child’snumber and severity of health impairments up to five yr after the childunderwent HSCT (Spearman’s rho for mothers 0.26–0.36 and forfathers 0.36–0.61). In conclusion, chronic stress in parents after achild’s HSCT seems to abate eventually. However, parents should bemonitored and offered adequate support when needed. Moreover, thesituation of fathers in the often mother-dominated pediatric settingshould receive more attention in research as well as in the clinic.

  • 8.
    Norberg, Annika Lindahl
    et al.
    Uppsala universitet, Klinisk psykologi i hälso- och sjukvård.
    Forinder, Ulla
    Co-morbidity of Psychological Reactions Among Parents After Paediatric Stem Cell Transplantation2014In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 23, no 3, p. 265-266Article in journal (Refereed)
  • 9. Riva, Roberto
    et al.
    Forinder, Ulla
    Stockholms universitet, Institutionen för socialt arbete - Socialhögskolan.
    Arvidson, Johan
    Mellgren, Karin
    Toporski, Jacek
    Winiarski, Jacek
    Lindahl Norberg, Annika
    Patterns of psychological responses in parents of children that underwent stem cell transplantation2014In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 23, no 11, p. 1307-1313Article in journal (Refereed)
    Abstract [en]

    Objective

    Hematopoietic stem cell transplantation (HSCT) is curative in several life-threatening pediatric diseases but may affect children and their families inducing depression, anxiety, burnout symptoms, and post-traumatic stress symptoms, as well as post-traumatic growth (PTG). The aim of this study was to investigate the co-occurrence of different aspects of such responses in parents of children that had undergone HSCT.

    Methods

    Questionnaires were completed by 260 parents (146 mothers and 114 fathers) 11-198 months after HSCT: the Hospital Anxiety and Depression Scale, the Shirom-Melamed Burnout Questionnaire, the post-traumatic stress disorders checklist, civilian version, and the PTG inventory. Additional variables were also investigated: perceived support, time elapsed since HSCT, job stress, partner-relationship satisfaction, trauma appraisal, and the child's health problems. A hierarchical cluster analysis and a k-means cluster analysis were used to identify patterns of psychological responses.

    Results

    Four clusters of parents with different psychological responses were identified. One cluster (n=40) significantly differed from the other groups and reported levels of depression, anxiety, burnout symptoms, and post-traumatic stress symptoms above the cut-off. In contrast, another cluster (n=66) reported higher levels of PTG than the other groups did. ConclusionsThis study shows a subgroup of parents maintaining high levels of several aspects of distress years after HSCT. Differences between clusters might be explained by differences in perceived support, the child's health problems, job stress, and partner-relationship satisfaction.

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