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  • 1.
    Kerpershoek, Liselot
    et al.
    Alzheimer Centre Limburg, Maastricht University, Maastricht, Netherlands.
    Wolfs, Claire
    Alzheimer Centre Limburg, Maastricht University, Maastricht, Netherlands.
    Verhey, Frans
    Alzheimer Centre Limburg, Maastricht University, Maastricht, Netherlands.
    Jelley, Hannah
    Bangor University, Bangor, UK.
    Woods, Bob
    Bangor University, Bangor, UK.
    Bieber, Anja
    Martin-Luther University Halle-Wittenberg, Halle, Germany.
    Bartoszek, Gabriele
    Martin-Luther University Halle-Wittenberg, Halle, Germany.
    Stephan, Astrid
    Martin-Luther University Halle-Wittenberg, Halle, Germany.
    Selbaek, Geir
    Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital, Tonsberg, Norway; Centre for Old Age Psychiatry Research, Innlandet Hospital Trust, Ottestad, Norway;Faculty of Medicine, University of Oslo, Oslo, Norway.
    Eriksen, Siren
    Norwegian National Advisory Unit on Ageing and Health, Vestfold Hospital, Tonsberg, Norway.
    Sjölund, Britt-Marie
    University of Gävle, Faculty of Health and Occupational Studies, Department of Caring Science, Caring Science. Aging Research Center (ARC), Department of Neurobiology, Care Sciences and Society (NVS), Karolinska Institutet and Stockholm University, Stockholm, Sweden.
    Hopper, Louise
    School of Nursing and Human Sciences, Dublin City University, Dublin, Ireland.
    Irving, Kate
    School of Nursing and Human Sciences, Dublin City University, Dublin, Ireland.
    Marques, Maria J.
    CEDOC, Nova Medical School, Faculdade de Ciências Médicas, Universidade Nova de Lisboa, Lisbon, Portugal.
    Goncalves-Pereira, Manuel
    CEDOC, Nova Medical School, Faculdade de Ciências Médicas, Universidade Nova de Lisboa, Lisbon, Portugal.
    Portolani, Daniel
    Zanetti, Orazio
    IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Brescia, Italy.
    Vugt, Marjolein
    Alzheimer Centre Limburg, Maastricht University, Maastricht, Netherlands.
    Optimizing access to and use of formal dementia care: Qualitative findings from the European Actifcare study2019In: Health & Social Care in the Community, ISSN 0966-0410, E-ISSN 1365-2524, Vol. 27, no 5, p. e814-e823Article in journal (Refereed)
    Abstract [en]

    This paper reports on qualitative data from the Actifcare study investigating experiences, attitudes, barriers and facilitators concerning access to and use of formal care. A total of 85 semi-structured in-depth interviews were conducted in eight European countries. Results were analysed with a deductive content analysis, first within country and then integrated in a cross-national analysis. Overall, analysis of the in-depth interviews revealed two major themes with five subcategories. The results can be summarised in an optimal pathway for access to dementia care. This pathway includes fixed factors such as disease-related factors and system-related factors. In addition there are personal factors that are subject to change such as attitudes towards care. An important finding consisted of the necessity of having sufficient information about the disease and available care and having a key contact person to guide you through the process of finding suitable care while monitoring your needs. In addition, it is important to involve your social network as they can take on care-giving tasks. It is helpful to have a diagnosis (in most countries). Concerning decision-making, the person closest to the person with dementia is in the majority of cases the one who makes the ultimate decision to access and use services and he/she should therefore be supported in this process. These results provide insight into the factors that influence the pathway to formal care use and help professionals to enhance access to formal dementia care by focusing on factors that can be modified.

  • 2.
    Salzmann-Erikson, Martin
    et al.
    School of Health and Society, Dalarna University, Falun, Sweden; Division of Mental Health and Addiction, Department of Acute Psychiatry, Oslo University Hospital, Ullevål, Oslo, Norway; School of Health and Medical Sciences, Örebro University, Örebro, Sweden .
    Eriksson, Henrik
    Röda Korsets Högskola; Mälardalens högskola.
    Fathers sharing about early parental support in health-care: virtual discussions on an Internet forum2013In: Health & Social Care in the Community, ISSN 0966-0410, E-ISSN 1365-2524, Vol. 21, no 4, p. 381-390Article in journal (Refereed)
    Abstract [en]

    Becoming a father is a life changing event and this transition is associated with various emotions. Educational activities aimed at new parents are important in healthcare parental support (HCPS). HCPS has been critiqued for its predominant focus on mothers, while the needs of fathers seem to have been downplayed. As a result, fathers often turn to Internet-based forums for support. As virtual discussions and mutual support among fathers take place in cyberspace, it is important to monitor these forums to observe the ways in which the fathers discuss HCPS. The aim of this study is to explore the ways in which new fathers visiting an Internet-based forum for fathers communicated their experiences of HCPS. A netnographic method consisting of six steps was used to gather and analyse the data. The findings show that fathers shared with one another their experiences of the attitudes expressed by HCPS workers as well as their own attitudes towards HCPS. The attitudes of HCPS workers that were directed towards the fathers were perceived as highly personal and individual, while fathers described their attitudes towards the HCPS in general terms, towards HCPS as a system. Overall, the fathers described HCPS as a valuable confirmatory support that eased their worries concerning sudden infant death syndrome (SIDS), colic, weight gain, fever and teething. Although the fathers expressed gratitude towards HCPS, they also shared their negative experiences, such as feeling invisible, disregarded and insulted. In fact, the twofold attitudes that exist in the relationship between the fathers and HCPS can act as a barrier rather than being a confirmatory support. We recommend that HCPS adopts a broader approach using more targeted and strategic didactic methods for supporting fathers in the growth of their own personal awareness, as such an approach would offer a competitive and professional alternative to the support offered in informal experience-based Internet forums.

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