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  • 1.
    Degerstedt, Frida
    et al.
    Department of Community Medicine and Rehabilitation, Physiotherapy, Umeå University, Umeå, Sweden; Umeå Center for Gender Studies, Umeå University, Umeå, Sweden.
    Enberg, Birgit
    Department of Community Medicine and Rehabilitation, Physiotherapy, Umeå University, Umeå, Sweden.
    Keisu, Britt-Inger
    Umeå Center for Gender Studies, Umeå University, Umeå, Sweden.
    Björklund, Martin
    Högskolan i Gävle, Akademin för hälsa och arbetsliv, Avdelningen för arbetshälsovetenskap och psykologi, Arbetshälsovetenskap. Högskolan i Gävle, Centrum för belastningsskadeforskning. Department of Community Medicine and Rehabilitation, Physiotherapy, Umeå University, Umeå, Sweden.
    Inequity in physiotherapeutic interventions for children with Cerebral Palsy in Sweden - a national registry study.2019Ingår i: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    AIM: The aim of this study was to investigate the distribution of physiotherapeutic interventions for children with Cerebral Palsy in Sweden from an equity perspective, considering sex, country of birth and geographical region.

    METHOD: This national cross-sectional registry study includes children with Cerebral Palsy aged 0-18 years who participated in 2015 in the Swedish national quality registry, the Cerebral Palsy follow-up program, CPUP. Comparisons and associations between physiotherapeutic interventions and sex, country of birth and geographical regions were conducted using Chi2 and logistic regression analysis, controlling for cognitive level, level of motor function, age group and dominating symptom.

    RESULTS: Of the 2855 participants, 2201 (79%) had received physiotherapy. Children born in Sweden had 1.60 times higher odds (95% CI 1.10-2.33) of receiving physiotherapy compared with children born in foreign countries. Distribution of physiotherapeutic interventions differed significantly between geographical regions. No associations between sex and physiotherapeutic interventions were observed.

    CONCLUSION: The results of this study indicate inequity in care in Sweden towards children with Cerebral Palsy born in other counties. Further, physiotherapeutic interventions were not equally distributed in different.

  • 2.
    Hedov, Gerth
    et al.
    Högskolan i Gävle, Institutionen för vårdvetenskap och sociologi, Ämnesavdelningen för vårdvetenskap.
    Wikblad, Karin
    Annerén, Göran
    First information and support provided to parents of children with Down syndrome in Sweden: clinical goals and parental experiences.2002Ingår i: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 91, nr 12, s. 1344-1349Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    When parents are informed that their newborn child has Down syndrome (DS), they often respond with a traumatic crisis reaction. The aims of this study were to assess the clinical goals regarding the first information and support provided to parents of newborn children with DS at the Swedish paediatric departments, and to analyse the parents' experiences of how they were first informed and treated. Data were collected during 1992-1993 from all of the 51 departments of paediatrics in Sweden. Information on the parents' experiences, collected retrospectively in 1996, was based on recollection by 165 parents of 86 children with DS born between 1989 and 1993 at 10 of the paediatric departments considered representative for Sweden. Seventy-five percent of the families were informed about the diagnosis within 24 h post partum. Some parents felt they were informed too late, and a few parents that they were told too soon. Half of the parents were satisfied with the timing. About 70% of the parents considered the information insufficient and 60% felt that they had been unsupported. Seventy percent would have liked more frequent information. Parental criticisms concerning the way in which the information was provided were that they received too much negative information about DS and that both the communication skills and the basic knowledge of DS on the part of the professionals could have been better. CONCLUSION: The Swedish paediatric departments fall short of their reported strong clinical goals regarding the initial information in Sweden, and improvements in this area are desirable.

  • 3.
    Nayeb, Laleh
    et al.
    Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.
    Lagerberg, Dagmar
    Department of Women’s and Children’s Health, Uppsala University, Uppsala, Sweden.
    Westerlund, Monica
    Department of Women’s and Children’s Health, Uppsala University, Uppsala, Sweden.
    Sarkadi, Anna
    Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.
    Lucas, Steven
    Department of Women’s and Children’s Health, Uppsala University, Uppsala, Sweden.
    Eriksson, Mårten
    Högskolan i Gävle, Akademin för hälsa och arbetsliv, Avdelningen för arbetshälsovetenskap och psykologi, Psykologi.
    Modifying a language screening tool for three-year-old children identified severe language disorders six months earlier2019Ingår i: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 108, nr 9, s. 1642-1648Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Aim: We examined if routine Swedish language screening for developmental language disorder (DLD) carried out at three years of age could be performed as effectively six months earlier. Methods: This study observed 105 monolingual Swedish-speaking children (53% boys) aged 29-31 months at three Swedish child health centres. We compared their ability to combine three words, as per the existing protocol, and two words. They also underwent a comprehension task. Speech and language pathologists clinically assessed the children for DLD and their results were compared with the nurse-led screening. Results: The results for the three-word and two-word criterion were the following: sensitivity (100% versus 91%) specificity (81% versus 91%), positive predictive (38% versus 56%) and negative predictive value (100% versus 99%). The three-word criterion identified 29 children with possible DLD, including 11 cases later confirmed, and the two-word criterion identified 18 possible cases, including 10 confirmed cases. DLD was overrepresented in the 10% of children who did not cooperate with the nurse-led screening. Conclusion: Changing the required word combinations from three to two words worked well. The three-word test identified one extra confirmed case, but resulted in 10 more false positives. Lack of cooperation during screening constituted an increased risk for DLD. 

  • 4.
    Sepp, Hanna
    et al.
    Department of Domestic Sciences, Uppsala University, Uppsala, Sweden.
    Lennernäs, Maria
    Swedish Dairy Association AB, Stockholm, Sweden.
    Pettersson, Rickard
    Department of Information Sciences, Uppsala University, Uppsala, Sweden.
    Abrahamsson, Lillemor
    Department of Domestic Sciences, Uppsala University, Uppsala, Sweden.
    Children's nutrient intake at preschool and at home2001Ingår i: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 90, nr 5, s. 483-491Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    A preschool-based dietary survey, using 7-d records, was carried out in a suburb of Stockholm. The aim was to assess the intake of food and the quality of the diet of preschool children aged 3-5 y at preschool and at home, and to compare the dietary intake with the Swedish dietary recommendations for preschool children. The respective mean intakes of protein, fat, carbohydrates and sucrose, expressed as a percentage of total energy intake were 14, 38, 50 and 9 at preschool, and at home 14, 36, 52 and 12 on weekdays, 14, 34, 55 and 16 on weekend days. The mean intakes of seven vitamins and minerals were low only for selenium as compared with the recommended level. No differences were found in nutrient density between diet at preschool and diet at home, with the exception of dietary fibre (higher at preschool). On weekdays there was a significantly higher nutrient density for calcium, zinc, selenium, vitamin A, riboflavin, vitamin C and dietary fibre compared with weekend days. Conclusion: The average intakes of energy and nutrients per meal at preschool compared with the recommended levels for children aged 4-6 y were low for all meals (breakfast, lunch and afternoon snack). This, however, was compensated for by home meals.

  • 5.
    Sydsjö, Gunilla
    et al.
    Department of Molecular and Clinical Medicine, Division of Obstetrics and Gynaecology, University Hospital, Linköping, Sweden.
    Lampic, Claudia
    Högskolan i Gävle, Institutionen för vårdvetenskap och sociologi, Ämnesavdelningen för vårdvetenskap. Department of Public Health and Caring Sciences, Uppsala University, Uppsala Science Park, Uppsala, Sweden.
    Sunnerud, Sofia
    Department of Molecular and Clinical Medicine, Division of Obstetrics and Gynaecology, University Hospital, Linköping, Sweden.
    Skoog Svanberg, Agneta
    Department of Women's and Children's Health, Academic Hospital, Uppsala, Sweden.
    Nurses promote openness regarding the genetic origins after gamete donation2007Ingår i: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 96, nr 10, s. 1500-1504Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Aim: To study attitudes and knowledge concerning different aspects of sperm and oocyte donation among paediatric nurses at child health care centres (CHCs) in Sweden. Method: A study-specific questionnaire, to be completed anonymously, was sent to 188 nurses, 141 of whom (75%) responded. Results: The majority of the respondents (62%) stated that they had no professional experience of families created with the help of a donor. A majority (53%) stated that they had good knowledge of the procedure followed in sperm donation, whereas 43% stated that they had good knowledge of the procedure of oocyte donation. More than 80% agreed that the parents should be honest with their child with regard to the child's genetic origin. Among the respondents who were in favour of disclosure, the preferred age for informing the child varied between 0 to 19 years (mean 7.2, SD 5.7). Conclusion: We conclude that the nurses working in CHCs need guidance and information about gamete donation in order to be able to support parents in the disclosure of information to their children and also how to inform or withhold information to significant others in their surrounding milieu.

  • 6. Westerlund, M.
    et al.
    Eriksson, Mårten
    Högskolan i Gävle, Institutionen för pedagogik, didaktik och psykologi, Ämnesavdelningen för psykologi.
    Berglund, E.
    A short-term follow-up of children with poor word production at the age of 18 months2004Ingår i: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 93, nr 5, s. 702-706Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Aim: (a) To study the stability of poor language development assessed by a new screening instrument based on parents' recognition of words their 18-mo-old children use; (b) to evaluate the predictability of the less-than-eight-words cut-off used by Child Health Centres (CHCs) in Sweden at the present 18-mo check-up--an assessment based on parents' recall of their children's vocabulary. Methods: All failures of the less-than-eight-words criterion, corresponding to about 10% of 1000 children from a community-based study, were followed up within half a year after the first assessment. The follow-up instrument was an extensive, internationally well-known and structured parent questionnaire, standardized for Swedish children. Results: Almost half of the followed-ups performed below the 10th percentile and more than two-thirds were found below the 20th percentile. Thus, after a few months about one-third of the children had caught up to a fairly normal level of performance. Two of the children who had recovered performed above median. More relaxed cut-off criteria were applied ad hoc , reducing the proportion of children with a fast recovery.

  • 7.
    Öborn, Helena
    et al.
    Division of Pediatrics, Department of Clinical Science, Technology and Intervention, Karolinska Institutet, Karolinska University Hospital, Stockholm, Sweden.
    Wettergren, Lena
    Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Stockholm, Sweden.
    Herthelius, Maria
    Division of Pediatrics, Department of Clinical Science, Technology and Intervention, Karolinska Institutet, Karolinska University Hospital, Stockholm, Sweden.
    Forinder, Ulla
    Högskolan i Gävle, Akademin för hälsa och arbetsliv, Avdelningen för socialt arbete och psykologi, Socialt arbete. Department of Neurobiology, Care Sciences and Society, Division of Social Work, Karolinska Institutet, Stockholm, Sweden.
    Associations between lower urinary tract dysfunction and health-related quality of life in children with chronic kidney disease2016Ingår i: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 105, nr 8, s. 959-966Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Aim Little is known about the health-related quality of life (HRQoL) of children with lower urinary tract dysfunction (LUTD) and chronic kidney disease (CKD). We investigated LUTD and other possible predictors of impaired HRQoL in children with conservatively treated moderate to severe CKD or with a kidney transplant.

    Methods All 64 children with CKD or a kidney transplant treated at Karolinska University Hospital, Stockholm, Sweden, between June 2011 and December 2012 were approached and 59 children aged 8-18 were enrolled in the study. Lower urinary tract function was evaluated with voiding history, frequency and volume chart, uroflowmetry and post void ultrasound measurements. Self-reported HRQoL was assessed with validated generic instruments.

    Results The HRQoL of the study cohort was as good as the general paediatric population, apart from the physical and psychological well-being dimensions, and was no different to children with other chronic conditions. Urinary incontinence, but not LUTD in general, was associated with impaired HRQoL, as was having a kidney transplant and being female in some dimensions.

    Conclusion LUTD was common in children with CKD or a kidney transplant but did not affect their general HRQoL. Predictors of impaired HRQoL included incontinence, having had a kidney transplant and being female.

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