Introduction:

Concurrent pain in the jaw and neck is common; however, little is known about how it develops. Previous studies have focused mainly on biological factors with limited focus on psychosocial factors and patients’ perspectives. To enhance understanding of concurrent jaw and neck pain, knowledge is needed about patients’ perspectives on the development of symptoms and their management within health care that also includes dentistry.

Objective:

To explore patients’ perspectives on the development of concurrent jaw and neck pain in relation to navigating the health care system.

Methods:

Sixteen individuals (11 women and 5 men, aged 19 to 56 y) with concurrent jaw and neck pain were recruited using purposive sampling. Participants were patients referred to an orofacial pain specialist in Sweden. Individual semi-structured interviews were used and analyzed using qualitative content analysis.

Results:

Data analysis resulted in the theme “Seeking understanding, confirmation, and simplified navigation in the health care system.” The main theme consisted of 3 subthemes: (1) understanding and interpreting the body and emotions holistically, (2) seeking affirmation and legitimacy from health care, and (3) wishing for clear and easily navigable health care pathways. Patients expressed thoughts regarding their own sensemaking in respect to causes for their pain. Moreover, they requested confirmation from health care along with simplified health care navigation and a holistic approach regarding pain management.

Conclusions:

A mismatch exists between the patient’s own sensemaking regarding the cause of their jaw and neck pain and the care they receive from their health care provider. Having pain from multiple sites that is managed in different medical systems makes it difficult to navigate within health care. A clear care pathway could reduce the risk of pain chronicity, and an increased collaboration between dentistry and medical care would be desirable.

Knowledge Transfer Statement:

Concurrent jaw and neck pain is common but often managed separately in dentistry and health care. This can result in a mismatch between a patient’s understanding regarding concurrent jaw and neck pain and directions from their health care provider. A holistic approach and increased collaboration between dentistry and health care are needed to support patients navigating health care providers and reduce the risk of pain chronification.